Alternative Title

Secondary data analysis of the 2009-2010 national survey of children with special health care needs

Publication Date

2017

Document Type

Masters Thesis

Study Type

Quantitative

Degree Name

Master of Social Work

Department

School for Social Work

Keywords

Caregivers-Psychology, Caregivers-Family relationships, Children with disabilities-Care-Research, Children with mental disabilities-Care-Research, National survery of children wit special health care needs (NS-CSHCN), Caregiver burden, Special health care needs, Burden, Family impact, Functional difficulty

Abstract

Children with special health care needs (CSHCN) make up 15% of U.S. children 18 and under. They require increased specialized care, which may pose unique challenges to families. Prior research suggests families from historically disenfranchised groups may experience greater burden due to systems of structural oppression. This quantitative secondary data analysis of the 2009-2010 National Survey of CSHCN (N=40,242) uses a cross-sectional design, testing whether family characteristics (race/ethnicity, caregiver’s gender or education level, and number of CSHCN in the home) or a child’s functional difficulty (chronic pain, behavior, anxiety/depression) are significantly associated with caregiver burden. Results suggest significantly greater time, financial, and employment burden is placed on female caregivers of CSHCN and that functional difficulties are significantly associated with caregiver burden. Findings suggest opportunities for additional legislative reform and investments in clinical work to mitigate the disproportionate burden placed upon CSHCN from historically disenfranchised communities.

Language

English

Comments

v, 92 pages. Includes bibliographical references (pages 68-73)

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