Secondary data analysis of the 2009-2010 national survey of children with special health care needs
Master of Social Work
School for Social Work
Caregivers-Psychology, Caregivers-Family relationships, Children with disabilities-Care-Research, Children with mental disabilities-Care-Research, National survery of children wit special health care needs (NS-CSHCN), Caregiver burden, Special health care needs, Burden, Family impact, Functional difficulty
Children with special health care needs (CSHCN) make up 15% of U.S. children 18 and under. They require increased specialized care, which may pose unique challenges to families. Prior research suggests families from historically disenfranchised groups may experience greater burden due to systems of structural oppression. This quantitative secondary data analysis of the 2009-2010 National Survey of CSHCN (N=40,242) uses a cross-sectional design, testing whether family characteristics (race/ethnicity, caregiver’s gender or education level, and number of CSHCN in the home) or a child’s functional difficulty (chronic pain, behavior, anxiety/depression) are significantly associated with caregiver burden. Results suggest significantly greater time, financial, and employment burden is placed on female caregivers of CSHCN and that functional difficulties are significantly associated with caregiver burden. Findings suggest opportunities for additional legislative reform and investments in clinical work to mitigate the disproportionate burden placed upon CSHCN from historically disenfranchised communities.
Davies, Chelsea, "Do characteristics of children and families influence reported caregiver burden? : a secondary data analysis of the 2009-2010 national survey of children with special health care needs" (2017). Masters Thesis, Smith College, Northampton, MA.